My wife has a genetic disorder that (among many other things) causes her spine to herniate at the drop of a hat. She’s had to have emergency surgery multiple times.
About a year and a half ago, a neurosurgeon was operating on her and came to talk to me and my mom who were waiting. She was extremely excited, in that like “academic who just saw something new” kind of way, because my wife had the third biggest herniation she’d ever seen, and the largest in a patient under 70 (my wife was 34 at the time). She asked if it would be OK if she invited a professor from the local university and a couple of his grad students to come look at it.
It is indeed EDS. 🙁